Written by: Laura LaMonica, PMHNP-BC

Obsessive-Compulsive Disorder (OCD) is frequently misunderstood and misrepresented in popular culture. It seems most people confuse OCD as just a quirky need for cleanliness or order and that’s not the case at all. OCD sufferers can experience debilitating anxiety along with shame that can make living an ordinary life a constant struggle. It’s important to educate others because often it's so difficult for OCD sufferers to talk about their experiences and if they do, they’re often not validated for the true agony it brings about.

 The Nature of OCD

OCD is characterized by intrusive, unwanted thoughts (these are the obsessions) and repetitive behaviors or mental acts (aka compulsions) that a person feels they need to complete in order to relieve the anxiety of the fear. These obsessions can be so distressing and can wreak havoc on relationships since it’s often misunderstood or the person is too embarrassed to discuss.  

The Burden of Intrusive Thoughts

One of the most challenging aspects of OCD is the intrusive thoughts. These thoughts can be about anything, but they often target a person's deepest fears and values. For example, someone with OCD might have persistent thoughts about harming themselves or others, even though they have no desire or intention to act on these thoughts.

The Shame and Isolation

The shame associated with these intrusive thoughts can be overwhelming. Individuals with OCD often feel embarrassed or guilty about their obsessions, fearing that others will judge them or think they are dangerous. This can lead to a significant amount of secrecy and isolation, making it difficult to seek help or support.

Misunderstanding from Others

A major hurdle for those with OCD is the lack of understanding from others. When someone shares their fears of self-harm or hurting others, people may not grasp that these are unwanted thoughts that cause immense distress. They might mistakenly believe that the individual wants to act on these thoughts, which is not the case. The person is actually terrified by the possibility and is seeking reassurance and understanding.

The Double-Edged Sword of Compulsions

Compulsions are repetitive behaviors or mental acts performed to reduce the anxiety caused by obsessions. While they may provide temporary relief, they reinforce the cycle of OCD, leading to more intrusive thoughts and more compulsions. This cycle can consume a significant amount of time and energy, impacting daily functioning and quality of life.

Why It's Hard to Talk About

1. Fear of Judgment: Individuals worry that others will see them as dangerous or unstable.

2. Lack of Awareness: Many people don't understand that intrusive thoughts are a symptom of OCD and not a reflection of the individual's true desires or intentions.

3. Stigma: Mental health issues still carry a stigma, and OCD is no exception. Admitting to having distressing thoughts can be particularly stigmatizing.

4. Fear of Consequences: There is a fear that disclosing these thoughts might lead to unwanted interventions, such as hospitalization or other drastic measures.

 Breaking the Silence

It's important to break the stigma with OCD and allow others to feel safe sharing their experiences without fear of judgment. Education and awareness is the answer to breaking the stigma and misconceptions regarding OCD. When others understand that intrusive thoughts are a symptom of the disorder and not a reflection of a person's character, we can offer better support and compassion.

Seeking Help

If you or someone you know is struggling with OCD, it's important to seek professional help. Exposure and response prevention therapy (ERP) has been shown to be highly effective in treating OCD. Medications like antidepressants such as selective serotonin reuptake inhibitors (SSRIs), can also be helpful in managing symptoms.

OCD is a complex disorder that requires understanding and compassion from others. By educating others and breaking the silence, we can create a supportive environment for those affected by OCD, helping them to feel less isolated and more empowered to seek the help they need.

If you or someone you know is experiencing symptoms of OCD, reach out to a mental health professional for guidance and support. Remember, you are not alone, and help is available.